The National Hemophilia Foundation will host three hemophilia walks during the month of August. The locations and dates are as follows: Colorado Chapter of the NHF – Denver, CO – August 16 Northern Ohio Hemophilia Foundation – Aurora, OH – August 16 Nebraska Chapter of the NHF – Omaha, NE – August 23 For […]
June is Myasthenia Gravis Awareness month and the Myasthenia Gravis Foundation of America is honoring it by each day by posting tips on their Facebook page. The goal of the awareness month is to increase awareness, research, and support for patients living with Myasthenia Gravis as well as their families . For more information or […]
On Saturday May 31 the New England Hemophilia Association will hold its hemophilia walk fundraiser. The event will take place at Francis William Bird Park in Walpole. Registration begins at 8:30 am and the walk will start at 10. To learn more about this event or how you can get involved please click here.
On Saturday May 3 there will be a TriState Myasthenia Gravis walk to raise funds for and awareness about Myasthenia Gravis. The walk will be held at Clinton Cover at the Hudson River Park in New York. Registration opens at 9 am and the walk begins at 10 am.
The Tennessee Hemophilia & Bleeding Disorder Foundation will hold its annual meeting June 14-16 in Pigeon Forge. The event will be held at the Music Road Hotel. There will be a number of breakout sessions for adults and activities for children and teens. For more information about the event please click here.
Hemophilia Association of the Capital Area (HACA) & Hemophilia Foundation of Maryland will be sending campers to Hole in the Wall Gang Camp, located in Ashford, CT, for kids ages 7-15 from June 13 – 19, 2014. The camp is designed as a place where kids with chronic and serious medical conditions can enjoy traditional […]
The Guillain-Barre Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy Foundation International will hold a Walk and Roll fundraiser in Philadelphia on June 22. The Greater Delaware Valley chapter is hosting the event which will take place at Wilson Farm Park in Chesterbrook. The walk will begin at 10 am. For more information and for how to […]
The World Federation of Hemophilia will hold the 2014 Congress in Melbourne Australia. The event will take place May 11-15 at the Melbourne Convention and Exhibition Centre. To learn more about this event please click here.
The Hemophilia Federation of America will host an inaugural Gears for Good charity bike ride in Andover, NH this summer. The fundraiser will take place June 27-29 and riders will follow 100 miles of the Northern Rail Trail. The money raised will go to the HFA Helping Hands financial assistance fund. For more information about […]
The Arizona Hemophilia Association will hold Camp Honor, for children 8-18 with bleeding disorders, June 2-7 2014. The mission statement of Camp Honor is “Is to enrich the lives of children affected by an inherited bleeding disorder by providing life-changing camp experiences that are exciting, empowering and educational, in a physically safe and medically sound […]
