The Hemophilia Federation of America is accepting nominations for the Terry Lamb Health and Wellness Award. The award will be given to someone who demonstrates an “exceptional commitment to supporting and encouraging health, nutrition and wellness behaviors in the bleeding disorders community”. Terry Lamb passed away in May last year. If you have a nomination, please […]
Archive | EVENTS
March is Hemophilia Awareness Month
EVENTS March 6, 2013
This month is Hemophilia Awareness Month. The Hemophilia Federation of America is posting a new hemophilia fact each day. To view the Fact of the Day please click here. Keep checking back here to learn more about what people and organizations are doing to help raise awareness about hemophilia!
6 Myasthenia Gravis Walks held over the weekend
EVENTS March 4, 2013
Six local Myasthenia Gravis Chapters held walks over the weekend to raise funds for and awareness about Myasthenia Gravis. The chapters that had their walks are: Atlanta, GA Orlando, FL Jacksonville, FL Palm Beach, FL Tallahassee, FL Tampa Bay, FL Here is a news story from the Jacksonville Journal about the walk that took place there. […]
Today is Rare Disease Day
EVENTS February 28, 2013
February 28 is Rare Disease Day. The Hemophilia Federation of America has a great news article which you can read by clicking here. Or to visit the Rare Disease Day 2013 Web site please click here. There are interesting links and some nice multimedia presentations about rare diseases.
Rare Disease Day 2013
EVENTS February 20, 2013
Rare Disease Day is almost a week away. There are events and activities that you can get involved in across the world. The Rare Disease Day Web site has several videos and other interesting content if you are interested in learning more. You can visit that site by clicking here.
Auction to Benefit Myasthenia Gravis Association
EVENTS February 18, 2013
The 19th Annual Sports Memorabilia Auction will benefit the Myasthenia Gravis Association of Western Pennsylvania. The event will take place April 7 from 3:00-7:00 pm at the Club at Nevillewood in Presto, PA. John Phillips from The Fan sports radio talk show will be the auctioneer. For more information about the event please click here.
Coalition for Hemophilia B
EVENTS February 11, 2013
The Coalition for Hemophilia B will hold a Symposium in New York City on March 23. There will be a keynote speaker as well as a variety of topics to be discussed at the the event geared specifically for those people living with hemophilia B and their families. For more information about the event please […]
Blood Brotherhood Tennessee Hemophilia Event
EVENTS February 1, 2013
The Tennessee Hemophilia and Bleeding Disorders Foundation will hold a Blood Brotherhood event on February 16 at 10:45 at Mia Cucina in Chattanooga. The meeting is for men 25 and older with bleeding disorders with the purpose of networking and sharing information. For more information about the event please click here.
Kawasaki Disease Awareness Day
EVENTS January 28, 2013
January 26th was Kawasaki Disease Awareness Day. The campaign $26 on the 26th is still open and there is still time to donate to the Kawasaki Disease Foundation. For more information about the foundation and Kawasaki Disease please click here.
Hemophilia of Maryland – Annual Meeting
EVENTS January 14, 2013
Hemophilia of Maryland will hold its Annual Meeting and Educational Dinner Night on February 2. The event will take place at the Hilton BWI. For the link for registration and more information about the event please click here.