Neuromuscular diseases affect the body’s ability to control its muscles. There is a variety of these diseases, and all of them can be difficult to live with. Different categories of neuromuscular disease exist, including autoimmune neuromuscular diseases, in which both the immune and muscular systems of the body are being affected by the disease. Having good resources that include a first-rate health care provider, a pharmacist who understands your condition, and books to help you understand the condition that you or a family member might be living with – all of these can make life a little bit easier.
Here are two books that may be helpful:
“Raising a Child with a Neuromuscular Disorder,” by Charlotte E. Thompson, M.D.,
Available from Amazon.com at: http://www.amazon.com/Raising-Child-Neuromuscular-Disorder-Professionals/dp/0195128435/ref=sr_1_1?s=books&ie=UTF8&qid=1319830496&sr=1-1
“Guide to Evaluation and Management of Neuromuscular Disease,” by John R. Bach, M.D.
This guidebook is a good resource for anyone who has a neuromuscular disease and wants more information about how to treat and manage their disorder. Being an expert on your condition and gathering enough information to understand it is important, and this book can help, since it takes such an in-depth approach to neuromuscular disease treatment and management. The author, John R. Bach, MD, is professor of physical medicine & rehabilitation; vice chairman, department of physical medicine & rehabilitation; professor of neuroscience; and co-director, Jerry Lewis Muscular Dystrophy Association Clinic, UMDNJ -The New Jersey Medical School, in Newark, N.J.
Available at Amazon.com at: http://www.amazon.com/Guide-Evaluation-Management-Neuromuscular-Disease/dp/1560533013/ref=sr_1_1?s=books&ie=UTF8&qid=1319830429&sr=1-1