The Delaware Valley Chapter of the NHF will hold the Annual Golf Classic on September 17 at the RiverCrest Golf Club and Preserve in Phoenixville, PA. There will be lunch at 11:45 followed by a shotgun start at 1:00 pm and cocktails and a dinner buffet after golf. For more information about the event please […]
Tag Archives | fundraiser
The Amazing Raise
The Virginia Hemophilia Foundation will take part in the The Amazing Raise on September 18-19. The event is a 36-hour online fundraising event that benefits participating nonprofit organizations in the Richmond and Tri-Cities region. For more information about the event, please click here.
Kawasaki Disease Foundation Challenge
The Kawasaki Disease Foundation Challenge is an online fundraiser to raise money to help find a test for Kawasaki Disease. The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar that is raised.
Florida Hemophilia Walk
This Saturday May 4 the Florida Hemophilia Association will hold its 2013 Hemophilia Walk. The walk will take place at Jungle Island in Miami and will start at 9:30 am. For more information about the walk and for how to register please click here.
VA Hemophilia Wine Tasting Event
The Virginia Hemophilia Foundation will host a Wine Tasting and Raffle on April 21. The event will take place at C Street in Richmond and there will be live music. Tickets are $40/person or $75/couple. For more information about the fundraiser please click here.
Auction to Benefit Myasthenia Gravis Association
The 19th Annual Sports Memorabilia Auction will benefit the Myasthenia Gravis Association of Western Pennsylvania. The event will take place April 7 from 3:00-7:00 pm at the Club at Nevillewood in Presto, PA. John Phillips from The Fan sports radio talk show will be the auctioneer. For more information about the event please click here.
Hemophilia Foundation of Maryland Auction
The Hemophilia Foundation of Maryland is having an online fundraising auction that is going on through the end of September. There are a number of different items that you can bid on. You can check out all the items by clicking here.
NYC Hemophilia Chapter Walk Results!
The NYC Hemophilia Chapter raised over $250,000 during the Hemophilia Walk that took place on June 3. About 1,500 participants walked through Riverside Park. The event raised $26,000 more than the goal. To see the team walk results, please click here.
Haley’s Ride Benefits People Living with Pompe Disease
Recently a members from the EXILED Motorcycle Club of Bracey and members of the Lake Gaston, NC Volunteer Fire Department gathered with friends and family of Haley Hayes to ride for awareness about Pompe Disease. Proceeds from the event go to help children living with Pompe disease. Photo taken from the EXILED Motorcycle club Facebook […]
NYC Firefighters Walk for Hemophilia
This past Saturday three New York City firefighters and hundreds of others walked in Riverside Park to raise funds and awareness for hemophilia. The final numbers are still being tallied but at least $225,000 was raised over the weekend. The three firefighters have an interesting story because their sons all have hemophilia. To read the […]