The Fall edition of The Concentrate is now available online. The Concentrate is the newsletter that Hemophilia of North Carolina publishes every quarter. There is information about past and future events as well as industry news. To read the newsletter please click here.
Tag Archives | North Carolina
Check Out The Concentrate
EVENTS September 6, 2013
Have you read the latest edition of The Concentrate? It is the quarterly magazine that is published by Hemophilia of North Carolina. There are articles about past events as well as information about upcoming events. To read the online version of the magazine, please click here.
Myasthenia Gravis Chapters in the Carolinas
EVENTS September 14, 2012
The Myasthenia Gravis Foundation of America has support group meetings across North and South Carolinas as a part of the Carolinas Chapter of the association. To view a complete list of support groups that meet in North and South Carolina please click here.
Haley’s Ride Benefits People Living with Pompe Disease
EVENTS June 20, 2012
Recently a members from the EXILED Motorcycle Club of Bracey and members of the Lake Gaston, NC Volunteer Fire Department gathered with friends and family of Haley Hayes to ride for awareness about Pompe Disease. Proceeds from the event go to help children living with Pompe disease. Photo taken from the EXILED Motorcycle club Facebook […]
United Pompe Foundation Patient Social @ Duke University April 19 – 21 2012
EVENTS February 8, 2012
The United Pompe Foundation will hold a patient social and meeting April 19-21 in North Carolina at Duke University. In addition to the social and networking time, there will be talks on current enzyme replacement therapy, the importance of diet and exercise as well as monitoring Pompe disease with MRIs. For more information about the […]
REMINDER: 5th Annual GBS/CIDP 5K and Miracle Mile
EVENTS April 27, 2011
On May 7th there will be a road races held in North Carolina to benefit those who have Guillain-Barre Syndrome and CIDP. There will be a 5K, one mile walk/run and a kids dash at the Southpark Area in Charlotte, NC. For more information please click here.