April is National Fabry Disease Awareness Month. For more information about Fabry Disease Awareness or to find an event near you please click here.
Tag Archives | awareness
October is Gaucher Awareness Month
EVENTS October 8, 2013
October is Gaucher Awareness Month. The National Gaucher Foundation is holding the 8th Annual Gaucher Awareness Auction now until October 30. To see all the items being auctioned or to place a bid, please click here.
12 Hemophilia Walks in August and September
EVENTS July 17, 2013
There are 12 Hemophilia Walks in August and September. Here is a list of the dates and locations of those walks. August 17 – Northern Ohio Hemophilia Foundation (Aurora) Colorado Chapter, NHF (Denver) September 7 – Rocky Mountain Hemophilia & Bleeding Disorders Assn. (Bozeman, MT) […]
Myasthenia Gravis Awareness Month
EVENTS June 10, 2013
June is Myasthenia Gravis Awareness Month. The Myasthenia Gravis Foundation of America is posting daily tips throughout the month on their Facebook page. To learn more about Myasthenia Gravis, please click here.
Cross-Country Walk for Fabry Disease
EVENTS May 15, 2013
Courtnay Midkiff is walking across the country to raise awareness for Fabry Disease. Fabry Disease is a rare genetic lysosomal storage disorder. To watch an interview that was recorded in Memphis, TN, please click here.
Garden State Chapter of the Myasthenia Gravis Foundation Walk
EVENTS May 8, 2013
The Garden State Chapter of the Myasthenia Gravis Foundation will hold a 5K walk this Saturday May 11. The walk will take place at Packanack Lake in Wayne, NJ at 10 am. Organizers hope to raise awareness about Myasthenia Gravis as well as raise money to help fight the disease. For more information about the walk, […]
Raising Awareness and Raising Children
KIDS & PARENTS April 5, 2013
The Hemophilia Federation of America recently posted on its blog about ‘Raising Awareness while Raising Children’. The post follows a theme about how one mother whose son has hemophilia and she realizes that at the same time she is raising awareness about hemophilia. To read the entire post, please click here.
Fabry Disease Awareness Month
EVENTS March 25, 2013
April is Fabry Disease Awareness Month. The National Fabry Disease Foundation and the Fabry Support and Information Group are working together to try and have as many state governors to make formal proclamations about Fabry Disease Awareness Month. For more information about Fabry Disease Awareness Month please click here.
Climbing Mountains and Raising Awareness about Hemophlia
MEDICAL NEWS February 13, 2013
Chris Bombardier has committed to a Seven Summit Challenge in order to raise awareness about hemophilia. Bombardier lives will hemophilia and is attempting to climb Mt. Aconcagua in Argentina. To read more about this Seven Summit Challenge please click here.
June is Myasthenia Gravis Awareness Month
EVENTS June 8, 2012
June is National Myasthenia Gravis Awareness Month. Find your local chapter and get involved!