Sangre de Oro – New Mexico’s hemophilia foundation – will hold its first Hemophilia Walk this year! The walk will take place on April 20 at 9 am in Tiguex Park in Albuquerque. For more information about the event please click here.
Archive | EVENTS
Hemophilia of NC Advocacy Day
EVENTS January 7, 2013
Hemophilia of North Carolina will host an Advocacy Day in the state’s capital on February 20. The event will take place in Raleigh and attendees will have the chance to meet with some members of the General Assembly. For more information about the event please visit the HNC Web site by clicking here.
Myasthenia Gravis newsletter
EVENTS December 21, 2012
The Myasthenia Gravis Foundation of America has the latest edition of it’s newsletter available online. Foundation Focus has articles written by patients as well as information about the latest research on the condition of Myasthenia Gravis. To read the newsletter in a PDF format please click here.
Mark your Calendars for Washington Days
EVENTS December 19, 2012
The National Hemophilia Foundation will hold the annual Washington Days event February 27 – March 1 2013 in Washington DC. The event will allow attendees to meet with their elected leaders as well as network with other people affected by hemophilia. For more information about the event please click here.
Myasthenia Gravis Golf Tournament
EVENTS December 10, 2012
Last week the Myasthenia Gravis Foundation of America held it’s first golf tournament in Windermere, Florida on December 3. The event featured a shotgun start and a dinner and silent auction following the golf.
Scranton Myasthenia Gravis Support Group
EVENTS November 26, 2012
The Myasthenia Gravis Support Group of Scranton, PA will meet on December 1 at 11 am. The meeting will take place at the Charles Lugar Outpatient Center. There will be two guest speakers at the meeting. For more information about the meeting please click here.
Kentucky Hemophilia Foundation Poinsettia Sale
EVENTS November 5, 2012
The Kentucky Hemophilia Foundation will be selling Poinsettias as part of a winter fundraiser. There is an online order form which will be available this month. For more information please click here.
NYC Hemophilia Dads in Action Event
EVENTS November 2, 2012
The NYC Hemophilia Chapter will hold a Dads in Action Event on November 3 at the Barclays Center. There will be time to socialize before the Brooklyn Nets basketball game. For more information please click here.
Pictures from the Hemophilia of NC Walk
EVENTS October 22, 2012
Here are a few pictures from the walk.
Young Women’s Wild West Retreat – Hemophilia of Michigan
EVENTS October 12, 2012
The Hemophilia Foundation of Michigan is hosting a Young Women’s Wild West Retreat this weekend. The event will take place at the Double JJ Ranch in Rothbury, MI. For more information about the event please click here.