The 2014 edition of the National Hemophilia Foundation’s magazine HemAware is now available. This edition of HemAware includes the latest industry news, a report from the NHF Annual Meeting and there is even a kids section – HemAware Jr. To read all the articles in this magazine please click here.
Tag Archives | National Hemophilia Foundation
National Hemophilia Foundation’s Washington Days February 26-28 2014
The National Hemophilia Foundation will hold it’s annual Washington Days February 26-28 this year. Washington Days allows people with bleeding disorders to meet lawmakers and their representatives to learn more about the legislative process and how healthcare policy is affected. To learn more about the NHF Washington Days please click here.
NHF 2014 Annual Meeting66th Annual Meeting, “Nothing About Us Without Us,” September 18-20, 2014
The National Hemophilia Foundation recently announced that the 66th NHF Annual Meeting will be held in Washington DC. The dates for the event are September 18-20. For more information about the NHF or annual meeting details please click here.
Western PA Hemophilia Newsletter
Check out the Western Pennsylvania Chapter of the National Hemophilia Foundation’s quarterly newsletter. The fall 2013 issue of Hemogram is available by clicking here.
Mark your Calendars for Washington Days
The National Hemophilia Foundation will hold the annual Washington Days event February 27 – March 1 2013 in Washington DC. The event will allow attendees to meet with their elected leaders as well as network with other people affected by hemophilia. For more information about the event please click here.
One Month until the NHF Annual Meeting
There is one month left until the National Hemophilia Foundation’s Annual meeting. The meeting this year is in Orlando, FL at the Orlando World Center Marriott Resort November 8-10. There will be activities and speakers for people of all ages. For more information about the event please click here.
WFH Congress Coming to Miami in 2016
The National Hemophilia Foundation won the bid to host the 2016 World Federation of Hemophilia’s World Congress. The biennial meeting is a place for members of the bleeding disorder community as well as medical and industry professionals to gather and discuss and learn about the latest developments impacting people living with bleeding disorders. It is […]
NHF Annual Meeting Anna DeSimone Scholarship
There are a few weeks left to apply for the Anna DeSimone Scholarship. The National Hemophilia Foundation created the scholarship in memory of Anna DeSimone, a founding member of the Foundation for Women and Girls with Blood Disorders and a community advocate for bleeding disorders that affect women. The scholarship will help fund women attending […]
Update on Hemophilia Treatment Centers
Last week the Senate Appropriations Committee voted to approve $6 million in funding for surveillance and research for Hemophilia Treatment Centers. The House must also agree to write in similar funding for next year’s budget in order for the funding to actually come through. The hemophilia community is closely watching and waiting for more information […]
Washington Days are Coming Up
Don’t forget about the 2012 Washington Days! The dates are March 7-9. There will be plenty of time to meet with lawmakers and staff as well as time to network with other families affected by bleeding disorders. For more information or to register please click here.