The New York City Hemophilia Chapter will hold a Spring Event at the Bronx Zoo on April 6 at 11:30 am. There will be a buffet lunch provided. For more information about the event please click here.
Archive | EVENTS
HNC Hope Pool Party
EVENTS March 5, 2014
Hemophilia of North Carolina will host a pool party on March 9 as a part of the HOPE project. The HOPE project is a program geared towards helping families who have children under 12 years old who have bleeding disorders. The pool party will be held at the YWCA Gateway Fitness Center in Winston-Salem. For […]
Today is Rare Disease Day!
EVENTS February 28, 2014
Today February 28, 2014 is Rare Disease Day. Events are being held across the world to raise awareness about rare diseases and how they affect lives of patients. To learn more about Rare Disease Day or to find an event near you, please click here.
WFH 2014 Congress
EVENTS February 26, 2014
The World Federation of Hemophilia will hold the 2014 Congress in Melbourne Australia. The regular registration deadline is March 14. The event will take place May 11-15 at the Melbourne Convention and Exhibition Centre. To learn more about this event please click here.
Rare Disease Day – February 28, 2014
EVENTS February 24, 2014
Rare Disease Day 2014 is less than one week away. There will be events around the world held on February 28 to raise awareness about rare diseases and how they affect lives of patients. To learn more about Rare Disease Day or to find an event near you, please click here.
3rd Annual NOW Conference
EVENTS February 11, 2014
The 3rd Annual NOW Conference will be held February 21-23 in Phoenix, Arizona. NOW stands for National Outreach von Willebrand. The event is for people living with von Willebrand Disease and their caretakers. For more information about the event please click here.
Rare Disease Day 2014
EVENTS February 7, 2014
Rare Disease Day 2014 is three weeks away. There will be events around the world held on February 28 to raise awareness about rare disease and how they affect lives of patients. To learn more about Rare Disease Day or to find an event near you, please click here.
Hemophilia of North Carolina’s Newsletter The Concentrate – Winter 2014
EVENTS, MEDICAL NEWS February 5, 2014
The winter edition of The Concentrate is now available online. The Concentrate is the newsletter that Hemophilia of North Carolina publishes every quarter. There is information about past and future events as well as industry news. To read the newsletter please click here.
Blood Brotherhood Event in Chicago
EVENTS January 30, 2014
The Bleeding Disorder Alliance of Illinois will hold a Blood Brotherhood event on February 4 from 6-9pm. The event will take place at the Chicago Glass Collective. For more information about the event please click here.
What the Hay 5K
EVENTS January 21, 2014
The Virginia Hemophilia Foundation will host the “What the Hay 5K” in Midlothian,VA on February 15. The fundraiser will take place at Robius Landing Park at 9 am. For more information about the event and how to register please click here.