Tag Archives | World Federation of Hemophilia

WFH Congress Coming to Miami in 2016

The National Hemophilia Foundation won the bid to host the 2016 World Federation of Hemophilia’s World Congress. The biennial meeting is a place for members of the bleeding disorder community as well as medical and industry professionals to gather and discuss and learn about the latest developments impacting people living with bleeding disorders. It is […]

Continue Reading

World Hemophilia Day 2010

On April 17 be sure to celebrate World Hemophilia Day and help raise awareness about Hemophilia, von Willebrand disease and other bleeding disorders. “The goal of the World Federation of Hemophilia is that, one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live,” said Mark Skinner, World […]

Continue Reading

Hemophilia in the Developing World

Research done by North Carolina State University researchers have shown that people living with hemophilia in the developing world are not getting the treatment that their condition requires. Dr. Jeff Stonebraker, a researcher at North Carolina State University, led the study that examined the occurrence of hemophilia and its treatment. The president of the World […]

Continue Reading