There will be a GBS-CIDP Walk and Roll in the Greater Delaware Valley on June 8 at Wilson Park. The Walk and Roll is a new fundraising campaign that the Guillain-Barre Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy Foundation has started. To learn more about the fundraising campaign or to enter the Greater Delaware Valley Walk […]
Archive | EVENTS
Florida Hemophilia Walk
EVENTS May 1, 2013
This Saturday May 4 the Florida Hemophilia Association will hold its 2013 Hemophilia Walk. The walk will take place at Jungle Island in Miami and will start at 9:30 am. For more information about the walk and for how to register please click here.
2013 HFA Symposium
EVENTS April 24, 2013
The Hemophilia Federation of America 2013 Symposium starts tomorrow! The event will take place in Dallas, Texas. For more information about the event please click here.
Run or Walk with Mike 5K
EVENTS April 22, 2013
On Sunday May 20th the High Ridge Corporate Center will host the inaugural Run or Walk with Mike 5K in Stamford, CT. The proceeds will benefit the Michael D. Rothman CIDP Research Fund. For more information about the event please click here.
World Hemophilia Day
EVENTS April 17, 2013
Today is World Hemophilia Day! What are you doing to participate in World Hemophilia Day?
Kawasaki Disease 5K and Fun Run
EVENTS April 15, 2013
On July 20 in Bryan, Ohio there will be a 5K and Fun Run to honor Owen Grant and will benefit the Kawasaki Disease Foundation. Registration opens at 7:30 am with the race, fun run and awards following. To learn more about the fundraiser and for the complete schedule please click here.
World Hemophilia Day 2013
EVENTS April 12, 2013
World Hemophilia Day is less than one week away! April 17 is a day when there are many activities worldwide to raise awareness about hemophilia. To find an event near you please click here.
WHF April Newsletter
EVENTS, MEDICAL NEWS April 8, 2013
The April edition of the World Hemophilia Foundation newsletter is now available. This year marks the 50th anniversary celebration for the World Hemophilia Foundation. To read the articles in the newsletter and to get information about the WHF Congress, please click here.
VA Hemophilia Wine Tasting Event
EVENTS April 1, 2013
The Virginia Hemophilia Foundation will host a Wine Tasting and Raffle on April 21. The event will take place at C Street in Richmond and there will be live music. Tickets are $40/person or $75/couple. For more information about the fundraiser please click here.
Fabry Disease Awareness Month
EVENTS March 25, 2013
April is Fabry Disease Awareness Month. The National Fabry Disease Foundation and the Fabry Support and Information Group are working together to try and have as many state governors to make formal proclamations about Fabry Disease Awareness Month. For more information about Fabry Disease Awareness Month please click here.