For Jake*, a musician who makes his living playing violin in Broadway shows, recording sessions and classical orchestras, the symptoms of chronic inflammatory demyelinating neuropathy (CIDP) started slowly. “I started experiencing very subtle tingling in my pinky in my right hand,” Jake says. “At the time, I didn’t think too much of it … If […]
Parent to Parent programs offer parent to parent support as a core resource for families with children who have a special health care need, disability, or mental health issue. Through a one to one "match" experienced support parents provide emotional support to families and assist them in finding information and resources. Parent to Parent programs […]
The Guillain-Barre Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy (GBS/CIDP) Foundation International is funding a fellowship to encourage the professional training of doctors in peripheral inflammatory neuropathy. The fellowship honors Robert Benson, a survivor of GBS, and his wife Estelle Benson. For more information about the fellowship please click here.
The Greater Atlanta Walk & Roll for GBS/CIDP is will held tomorrow October 12. The event will take place at Covington Square in Covington, GA and will begin at 10 am. For more information about the event please click here.
There will be a GBS-CIDP Walk and Roll in the Greater Delaware Valley on June 8 at Wilson Park. The Walk and Roll is a new fundraising campaign that the Guillain-Barre Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy Foundation has started. To learn more about the fundraising campaign or to enter the Greater Delaware Valley Walk […]
On Sunday May 20th the High Ridge Corporate Center will host the inaugural Run or Walk with Mike 5K in Stamford, CT. The proceeds will benefit the Michael D. Rothman CIDP Research Fund. For more information about the event please click here.
Have you visited the Guillain-Barre Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy Foundation International forums page? That is a great way to connect with other patients as well as have any questions you have answered. To visit the forums section of the GBS CIDP site please click here.
Cowboy for a Cure has created a page for people living with GBS-CIDP to connect and share their stories. There are also links to follow Johnny’s journey as he raises awareness and support for GBS-CIDP. To visit the GBS-CIDP Connections please click here.
If you are living with either Guillain-Barre Syndrome or Chronic Inflammatory Demyelinating Polyneuropathy and you are looking for a support group, this Web site is for you. GBS/CIDP Foundation International has a number of online resources including a forum. There is also a form you can fill out to find the local GBS/CIDP support group […]
Livestrong.com has a good article on diet for people living with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Included is information on the recommended foods to include in your diet and foods that should be avoided. To read the article please click here. Read More About CIDP on Our Blog Patient Profile: Violinist Living with CIDP
