Parent to Parent programs offer parent to parent support as a core resource for families with children who have a special health care need, disability, or mental health issue. Through a one to one "match" experienced support parents provide emotional support to families and assist them in finding information and resources. Parent to Parent programs […]
Tag Archives | IVIg
Man with Stiff-Person Syndrome Finishes Marathon
WELLNESS & FOOD April 30, 2013
The Monterey County newspaper recently wrote a great article about a man with Stiff-Person Syndrome who completed the Big Sur Marathon. To read about Shane James’ interesting and uplifting story, please click here.
IVIg A Possible Treatment for Alzheimer’s
MEDICAL NEWS July 19, 2012
An experimental study finds that Gammagard IVIg solution may be able to prevent Alzheimer’s disease from worsening three years, but more research will be needed to confirm this claim. Doctors say that four patients who received the highest dose of Gammagard in early testing showedno decline on memory and cognition tests three years later. The […]
Happy National Nurses Week!
EVENTS May 7, 2012
This week is national nurses week! We want to thank all everyone in the nursing field for their hard work and dedication to their patients.
Upcoming Meetings for the Greater Florida Chapter of the Myasthenia Gravis Foundation of America
EVENTS January 12, 2012
If you live in the Florida Area and are looking for a Myasthenia Gravis support group meeting, then there are some meetings coming up in the next several weeks. Boynton Beach Support Group – January 21 at 1 pm Daytona Beach Support Group – January 28 at 10 am St. Petersburg Support Group – February […]
Cowboy for a Cure
MEDICAL NEWS October 12, 2011
Here is a great story about a man who is dedicating time in his life to raise awareness about Guillain Barre Syndrome by riding a horse across the country! Johnny is riding from California to New York state. GBS is a condition that effects the immune system. For more information about Johnny’s journey or to […]
Rheumatoid Arthritis – Book Reviews
WELLNESS & FOOD August 19, 2011
Rheumatoid arthritis is an autoimmune disease characterized by chronic inflammation of the joints, and at times, surrounding tissue and organs. In more serious cases, the disease can lead to the destruction of cartilage, bone and ligaments. Your doctor is a great source for information about your condition, but here are a few books that you […]
Possible Improvements for IVIg Medicare Patients
MEDICAL NEWS July 27, 2011
A bill recently introduced in both houses of Congress could change the way that Medicare patients receive their IVIg infusions. Current legislation under the Medicare IVIG Access Act of 2008 covers IVIg infusions but does not reimburse for in-home infusions. This means that patients must go to infusion centers or hospitals to receive their medication. […]
Primary Immune Deficiency
WELLNESS & FOOD July 20, 2011
Most people don’t consciously think about all the day-to-day exposure we come into contact with, as we typically rely unknowingly on our immune system to fight off colds, infections, viruses and other disease-causing microbes. The immune system works efficiently to protect our bodies. Therefore, people who suffer from immune deficiencies are at a much higher […]
Myasthenia Gravis Foundation of California
EVENTS May 20, 2011
The Myasthenia Gravis Foundation of California has a great Web site with information on support groups in the state as well as a newsletter section and a section in Spanish. Please click here to visit their site. Myasthenia Gravis is an autoimmune neuromuscular disease characterized by weakness in the skeletal or voluntary muscles. One of […]