http://www.ninds.nih.gov/disorders/multifocal_neuropathy/multifocal_neuropathy.htm?Input=Continue
Tag Archives | resources
Facing Fabry Together
MEDICAL NEWS May 24, 2013
Check out the Facing Fabry Together Web site. It is a site dedicated to telling the stories of people and their families living with Fabry Disease. To visit the site please click here.
Gaucher’s Disease Type 2 and 3
MEDICAL NEWS January 25, 2013
If you are interested in Gaucher’s Disease Type 2 and 3 there is a Facebook page that you need to check out. The GT23 Foundation has a page that has information to help support families as well as fundraising information for treatment for those living with the condition. To visit the Facebook page, please click […]
Hemophilia Foundation of Northern California
WELLNESS & FOOD December 28, 2012
The Hemophilia Foundation of Northern California has a great Web site that includes information about upcoming events and summer camps. To visit the site please click here.
National Gaucher Foundation Member Drive
MEDICAL NEWS July 16, 2012
Help the National Gaucher Foundation reach its goal of having 1000 members by the end of 2012. There are already over 500 members so far. Members have access to the Foundation’s newsletter as well as discounts on conference registration. For more information or to sign up, please click here.
Hemophilia Foundation of Michigan
MEDICAL NEWS June 25, 2012
The Hemophilia Foundation of Michigan has a great Web site which includes resources and event information for people living in Michigan. There are a number of events happening this summer so check them out. To visit the Web site please click here.
Arizona Hemophilia Association Blog
MEDICAL NEWS May 30, 2012
The A has a great blog on their Web site. The blog has information about upcoming events, industry news and guest blog entries. Add it to your reading list today!
GBS / CIDP Support Groups
EVENTS May 21, 2012
If you are living with either Guillain-Barre Syndrome or Chronic Inflammatory Demyelinating Polyneuropathy and you are looking for a support group, this Web site is for you. GBS/CIDP Foundation International has a number of online resources including a forum. There is also a form you can fill out to find the local GBS/CIDP support group […]
Hemophilia of Indiana’s Blog
EVENTS, MEDICAL NEWS March 26, 2012
Check out Hemophilia of Indiana’s blog! There is a really interesting post for Hemophilia Awareness month. To visit the blog please click here.
National Fabry Disease Foundation Community Newsletter
MEDICAL NEWS December 16, 2011
The National Fabry Disease Foundation publishes a monthly newsletter with great information for patients and their families. Links to past newsletters are also available. To read this month’s newsletter, please click here.