Nutrition is of particular importance to people with hemophilia, because what is consumed can reduce risks of bleeding and improve blood clotting. To meet this goal, eat and drink foods rich in the following nutrients: Vitamin K (spinach, broccoli, turnip greens, cabbage, asparagus, dark green lettuce, oats, bran, alfalfa, soybeans, whole wheat breads, canola, soybean and olive oils, […]
This is a great recipe for the cooler weather! The picture really does not do the flavor of the soup justice so you will just have to whip this up and try it for yourself. Split Pea Soup + 1 bag of split peas + 1 quart of vegetable stock + 2 tablespoons extra virgin […]
Here is a fun recipe that is great for summer veggies. It is from the magazine Cook’s Illustrated. This recipe is nice because you can do the prep the night before and serve it the next day. The key to this recipe is using fresh parmesan cheese. Pasta Salad With Asparagus and Red Peppers 1 […]
Maintaining a healthy, safe and active lifestyle while living with hemophilia is very important for adults who have hemophilia and parents of children who have hemophilia. A healthy lifestyle does not just involve food but encompasses diet, exercise and a positive attitude to stay focused on being healthy. Here are a few tips for living […]
Mark your calendars for the Colorado Lysosomal Disorders Program Gaucher and Fabry Patient and Family Conference on August 27th. The conference will take place at Children’s Hospital Colorado from 9:00am to 11:30am. There will be a couple joint sessions as well as breakout sessions. Please click here for more information.
A bill recently introduced in both houses of Congress could change the way that Medicare patients receive their IVIg infusions. Current legislation under the Medicare IVIG Access Act of 2008 covers IVIg infusions but does not reimburse for in-home infusions. This means that patients must go to infusion centers or hospitals to receive their medication. […]
Exercise is important for all individuals, but for those with hemophilia it provides muscular strength and a lower body weight, inevitability improving and maintaining joint health. For many, exercising and leading an active healthy lifestyle is critical, as some suggest that particular training methods can decrease the frequency of bleeding potential. There are countless ways […]
No matter which therapy or treatment you use, the most important thing is safety. First, you must understand your disease and the impact it has on your body. When selecting a method of treatment, consider your personal lifestyle and make sure to allow for adequate time for treatment. Remember that staying healthy and being active […]
Livestrong.com recently published a great article titled “Physical Therapy For Myasthenia Gravis“. Myasthenia Gravis is characterized by muscle weakness during physical activity so it is important you discuss any changes to your exercise routine with your doctor. The topics in this article include different exercises for your muscles as well as breathing exercises and techniques. […]
There are plenty of reasons to be excited about the onset of summer, a favorite being the opportunity to catch some rays. Did you know, however, that more studies are finding an increase in vitamin D, whose production is prompted by sun exposure, can help lower your risk of developing multiple sclerosis (MS)? Allow me […]
