There is still time to sign up for a Fall 2012 Myasthenia Gravis Walk. Walks will be held in Ohio, Delaware Valley, Illinois, Arizona, Texas and California. There is also a Virtual Walk that you can participate in if there is not a walk in your area. For more information about the walk please click […]
Archive | EVENTS
Wisconsin Bleeding Disorders Conference
EVENTS July 9, 2012
Mark your calendars for the Wisconsin Bleeding Disorders Conference June 7-9 2013. The conference next year will be held at the Kalahari Resort in Wisconsin Dells, WI. The Great Lakes Hemophilia Foundation will have talks and activities during the event. For more information please click here.
NYC Hemophilia Chapter Walk Results!
EVENTS July 6, 2012
The NYC Hemophilia Chapter raised over $250,000 during the Hemophilia Walk that took place on June 3. About 1,500 participants walked through Riverside Park. The event raised $26,000 more than the goal. To see the team walk results, please click here.
NHF Annual Meeting Anna DeSimone Scholarship
EVENTS July 3, 2012
There are a few weeks left to apply for the Anna DeSimone Scholarship. The National Hemophilia Foundation created the scholarship in memory of Anna DeSimone, a founding member of the Foundation for Women and Girls with Blood Disorders and a community advocate for bleeding disorders that affect women. The scholarship will help fund women attending […]
Haley’s Ride Benefits People Living with Pompe Disease
EVENTS June 20, 2012
Recently a members from the EXILED Motorcycle Club of Bracey and members of the Lake Gaston, NC Volunteer Fire Department gathered with friends and family of Haley Hayes to ride for awareness about Pompe Disease. Proceeds from the event go to help children living with Pompe disease. Photo taken from the EXILED Motorcycle club Facebook […]
Hemophilia Fundraiser Activities
EVENTS June 15, 2012
The Western Pennsylvania Chapter of the National Hemophilia Foundation has a day full of fun activities for people who want to come help support the Foundation. There will be an auction, car show and cornhole tournament on Saturday June 16 at 11 at Clark Field in Newell, PA. For more information about the event, please […]
June is Myasthenia Gravis Awareness Month
EVENTS June 8, 2012
June is National Myasthenia Gravis Awareness Month. Find your local chapter and get involved!
NYC Firefighters Walk for Hemophilia
EVENTS June 5, 2012
This past Saturday three New York City firefighters and hundreds of others walked in Riverside Park to raise funds and awareness for hemophilia. The final numbers are still being tallied but at least $225,000 was raised over the weekend. The three firefighters have an interesting story because their sons all have hemophilia. To read the […]
GBS / CIDP Support Groups
EVENTS May 21, 2012
If you are living with either Guillain-Barre Syndrome or Chronic Inflammatory Demyelinating Polyneuropathy and you are looking for a support group, this Web site is for you. GBS/CIDP Foundation International has a number of online resources including a forum. There is also a form you can fill out to find the local GBS/CIDP support group […]
Myasthenia Gravis Foundation of America Spring 2012 Newsletter Foundation Focus
EVENTS May 9, 2012
The Myasthenia Gravis Foundation of America has released the 2012 Spring newsletter. Foundation Focus includes a variety of topics including local chapter updates and 2012 walk updates. To read the newsletter please click here.