The Virginia Hemophilia Foundation will host a dinner on December 13 with a talk that will focus on sports and exercise and hemophilia. The event will take place at the Hilton Richmond at 6:30. For more information about the event, please click here.
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Myasthenia Gravis Foundation – Northwest Texas Chapter
If you are in Northwest Texas and you or one of your family members has Myasthenia Gravis here is an excellent resource for you. The Northwest Texas Chapter of the Myasthenia Gravis Foundation of America has information on local support groups and personal stories of life with Myasthenia Gravis. To visit the Web site, click […]
International Pompe Association
Check out this Web site which is a great resource for Pompe disease patients and their families. The International Pompe Association site is full of information about the condition, patient testimonials, as well as as information about events and gatherings. For more information, please click here.
Hemophilia Association of the Capital Area 2011 Holiday Party
The Hemophilia Association of the Capital Area will hold its 2011 Holiday Party on December 4. The event will take place at the Imagination Stage in Bethesda, MD. For more information about the event and how to attend and RSVP, please click here.
MG Central Texas Support Group
The Myasthenia Gravis Central Texas Support Group will hold its next meeting on November 9. The meeting will take place at the Austin Public Library Spicewood Springs Branch at 7 pm. For more information about the meeting or the group, please click here.
NHF Annual Meeting in Chicago
There is less than 2 weeks left until the National Hemophilia Foundation’s Annual meeting. The event will take place November 10-12 at the Hyatt Regency Chicago. The theme of the meeting is “Inspiration in the Windy City.” Sessions cover themes for healthcare providers, parents, and kids. For a full list of presentation and other information […]
NC Hemophilia Casino Night
Mark your calendars for a fun night for a great cause. Hemophilia of North Carolina will host the 5th annual Casino Night “Hearts for Hemophilia” on January 21. The event will take place at the American Tobacco Campus in Durham and will start at 6:30. For more information please click here.
10th International Kawasaki Disease Symposium
Mark your calendars for the 10th International Kawasaki Disease Symposium! The Symposium will take place on February 7-10, 2012 at the Hyatt Regency in Kyoto, Japan. There will be talks and forums to discuss the treatment of and research of Kawasaki Disease.
Hemophilia Outreach Center
The Hemophilia Outreach Center is a great source for hemophilia support services in Northeast Wisconsin and the Upper Peninsula of Michigan. There are a number of programs to assist people and families who live with bleeding disorders. For more information about the Hemophilia Outreach Center, please click here.
National Gaucher Foundation Online Auction
The National Gaucher Foundation will hold an online auction October 1 through October 31. The money raised from the auction will go to support education, awareness and research of Gaucher Disease. There is a huge selection of great items to bid on to help support a good cause. Please click here for more information on […]