Here are a list of locations for Fall walk dates for the Myasthenia Gravis Association. + Phoenix, AZ + Los Angeles County, CA + Sacramento, CA + San Diego, CA + San Francisco, CA + Boston, MA + Kansas City, MO + St. Louis, MO + Portland, OR + Seattle, WA + Fall Virtual Walks […]
Archive | EVENTS
Huge Success at the St. Pete Wiffle Ball Tournament
EVENTS July 15, 2011
Over $150,000 was raised for the JMF’s Southeast Primary Immunodeficiency Fund at the St. Pete wiffle ball tournament! The event took place on July 3 at the Don CeSar Beach Resort on St. Pete Beach and there was lots of food, fun, and games. Organizers want to especially thank everyone who participated in the event […]
Moms Group Meeting in PA
EVENTS, KIDS & PARENTS June 27, 2011
The Western Pennsylvania Chapter of the National Hemophilia Foundation will hold a Moms Group Meeting on July 9. The meeting is for moms who have a bleeding disorder or moms who have children who have bleeding disorders like hemophilia and von Willebrand Disease. For more information about the meeting please click here.
Myasthenia Gravis Association – Missouri and Kansas
EVENTS May 25, 2011
Check out another great association’s Web site. The site for the Myasthenia Gravis Association of Missouri and Kansas has a number of resources and even a great video! Click here to visit the site.
VA Hemophilia Foundation Annual Meeting
EVENTS May 23, 2011
The 2011 Annual State Meeting for the Virginia Hemophilia Foundation is less than one month away! The meeting will be held on June 17 and 18 at Second Baptist Church in Richmond, VA. Both the Virginia Hemophilia Association and the Hemophilia Association of the Capital Area will present chapter updates. There were will be a […]
Myasthenia Gravis Foundation of California
EVENTS May 20, 2011
The Myasthenia Gravis Foundation of California has a great Web site with information on support groups in the state as well as a newsletter section and a section in Spanish. Please click here to visit their site. Myasthenia Gravis is an autoimmune neuromuscular disease characterized by weakness in the skeletal or voluntary muscles. One of […]
Batter Up! with the Norfolk Tides
EVENTS May 13, 2011
The Virginia Hemophilia Foundation will host a night with the Norfolk Tides baseball team May 21. For more information about the event please click here. There will be a special guest speaker – Marc Gilgannon – a physical therapist who will be talking about the Living Fit program.
National Nurses Week
EVENTS May 11, 2011
It is National Nurses Week! National Nurses Week is celebrated from May 6 to May 12. May 12 is an important date in nursing history because it is the birthday of Florence Nightingale who is founder of modern nursing. The theme of this year’s National Nurses Week is Nurses Trusted to Care!
Myasthenia Gravis National Conference
EVENTS April 29, 2011
The Myasthenia Gravis Foundation of America will hold the 2011 National Conference in Baltimore, Maryland May 4-6. The conference will be held at the Tremont Plaza Hotel. There is a great list of speakers and will be attended by patients and families. For more information please click here.
REMINDER: 5th Annual GBS/CIDP 5K and Miracle Mile
EVENTS April 27, 2011
On May 7th there will be a road races held in North Carolina to benefit those who have Guillain-Barre Syndrome and CIDP. There will be a 5K, one mile walk/run and a kids dash at the Southpark Area in Charlotte, NC. For more information please click here.