April is National Fabry Disease Awareness Month! What are you doing to raise awareness about Fabry Disease? For more information please click here.
Tag Archives | awareness
Hemophilia of Indiana’s Blog
EVENTS, MEDICAL NEWS March 26, 2012
Check out Hemophilia of Indiana’s blog! There is a really interesting post for Hemophilia Awareness month. To visit the blog please click here.
Hemophilia Awareness News Article
MEDICAL NEWS March 19, 2012
The Indianapolis Star recently published an article about two men living with hemophilia. This month is Hemophilia Awareness Month. To read the article please click here. If you know of a published article about someone living with hemophilia please leave us the link in the comments section.
Hemophilia Awareness Month
EVENTS March 14, 2012
March is Hemophilia Awareness Month. Learn more about hemophilia and von Willebrand disease.
2012 NHF Washington Days
EVENTS January 16, 2012
The National Hemophilia Foundation’s 2012 Washington Days are fast approaching. The dates have been set for March 7-9. There will be plenty of time to meet with lawmakers and staff as well as time to network with other families affected by bleeding disorders. For more information or to register please click here.
Hemophilia Outreach Center
EVENTS, MEDICAL NEWS October 5, 2011
The Hemophilia Outreach Center is a great source for hemophilia support services in Northeast Wisconsin and the Upper Peninsula of Michigan. There are a number of programs to assist people and families who live with bleeding disorders. For more information about the Hemophilia Outreach Center, please click here.
$40,000 Raised at the Colorado Hemophilia Walk!
EVENTS August 23, 2011
The Colorado Hemophilia Walk was held on August 13 raised $40,000! The walk raised lots of funds for the organization but also raised awareness about hemophilia in the Denver area. Keep checking back here for more information about other walks in the 2011 season.
National Fabry Disease Foundation Blog
MEDICAL NEWS July 22, 2011
The National Fabry Disease Foundation has started a new blog! Jerry is writing the blog. He is writing with the purpose to raise awareness about Fabry Disease as well as keep everyone informed about events in the Fabry disease community.
VA Hemophilia Foundation Annual Meeting
EVENTS May 23, 2011
The 2011 Annual State Meeting for the Virginia Hemophilia Foundation is less than one month away! The meeting will be held on June 17 and 18 at Second Baptist Church in Richmond, VA. Both the Virginia Hemophilia Association and the Hemophilia Association of the Capital Area will present chapter updates. There were will be a […]
Myasthenia Gravis National Conference
EVENTS April 29, 2011
The Myasthenia Gravis Foundation of America will hold the 2011 National Conference in Baltimore, Maryland May 4-6. The conference will be held at the Tremont Plaza Hotel. There is a great list of speakers and will be attended by patients and families. For more information please click here.