You’ve got your prophylactic infusion schedule set, and you’re perfectly comfortable self-infusing. You’re exercising regularly, and you’re eating well. In short, you’re taking great care of yourself and managing your bleeding disorder just fine. But you’ve still got a few bruises from bumping into things, tripping or falling. Hemophiliacs and those with von Willebrand disease […]
Heart disease affects nearly 27 million Americans each year (CDC.gov). Luckily, by staying attentive to eating well, and exercising regularly, you can keep your heart healthy and reduce your risk of developing heart disease. There are two schools of thought when it comes to the relation of heart disease to hemophilia. A 2009 study at […]
While it’s true that hemophiliacs need to avoid playing intensely physical contact sports like football, boxing or rugby, many people with hemophilia do participate in other sports on a regular basis. In fact, staying active is even more important for hemophiliacs than it is for people without the disease, since a strong body is better […]
Parent to Parent programs offer parent to parent support as a core resource for families with children who have a special health care need, disability, or mental health issue. Through a one to one "match" experienced support parents provide emotional support to families and assist them in finding information and resources. Parent to Parent programs […]
The Arizona Hemophilia Association will hold Camp Honor, for children 8-18 with bleeding disorders, June 2-7 2014. The mission statement of Camp Honor is “Is to enrich the lives of children affected by an inherited bleeding disorder by providing life-changing camp experiences that are exciting, empowering and educational, in a physically safe and medically sound […]
In this podcast, Anne Lowish, registered nurse at MedPro RX, discusses Section 504 and how it applies to students dealing with hemophilia. Lowish addresses how Section 504 applies to school nurses, students with hemophilia as well as their parents. Lowish also mentions the many different programs and activities offered to students with disabilities through Section […]
Time is running out to apply for the 2014-15
On May 3 Hemophilia of North Carolina will hold it’s annual meeting in Charlotte at the Omni Hotel. The deadline for registration is April 25. For more details about the meeting and for the complete schedule please click here.
World Hemophilia Day 2014 is almost here. On April 17 there will be events around the world and online to raise awareness about hemophilia and other bleeding disorders. For more information or to get involved, please click here.
If you are interested in participating in helping raise awareness about and funds for hemophilia here are a list of NHF walks that will be taking place this month. April 19 – Berkeley, CA – Hemophilia Foundation of Northern CaliforniaApril 26 – Tulsa, OK – Oklahoma Hemophilia Foundation To register or to find out more […]
