Don’t forget about the 2012 Washington Days! The dates are March 7-9. There will be plenty of time to meet with lawmakers and staff as well as time to network with other families affected by bleeding disorders. For more information or to register please click here.
Tag Archives | hemophilia
Education is Power Scholarship Application
Don’t forget about applying for the 2012 MedPro Rx Education is Power scholarship. For the application and requirements for applying, please click here!
Hemophilia Chapter News
Hemaware recently reported that several Executive Directors of local hemophilia chapters are retiring. Directors from the Delaware Valley Chapter, Northern Ohio Chapter, Hemophilia Association of the Capital Area, and Hemophilia Foundation of Oregon have retired or are retiring soon. To read the full story please click here.
New study promises mobility, major relief for people living with hemophilia
By Reid Coleman I am excited to be participating in a new study that has major implications for the hemophilia community if it succeeds, which I hope it will. The change it has made in my life is absolutely miraculous. In mid-January I received a device called WalkAide, which monitors my gait and adjusts my […]
2012 Hemophilia Walks
The National Hemophilia Foundation is kicking off the 2012 Hemophilia Walk season with a new Web site! This year there will be 24 walk locations across the United States. Not all the locations have set the time and date for the walks but you can still visit the new site by clicking here.
Check out this Hemophilia Video
Here is a really great video for young adults and adults on hemophilia and what happens during the coagulation process. If you know of any other good educational videos on bleeding disorders or autoimmune disorders please let us know!
2012 NHF Washington Days
The National Hemophilia Foundation’s 2012 Washington Days are fast approaching. The dates have been set for March 7-9. There will be plenty of time to meet with lawmakers and staff as well as time to network with other families affected by bleeding disorders. For more information or to register please click here.
Central Texas Hemophilia Association – Balancing Sports and Exercise
The Central Texas Hemophilia Association will host an evening talk on Balancing Sports and Exercise. The presentation will be in Spanish and will take place at Pappasitto’s Cantina in Arlington, TX. For more information about the event, please click here.
Hemophilia Federation of America – Symposium 2012
Save the date for March 30-31, 2012. The Hemophilia Federation of America will host the 2012 Symposium in Santa Clara, CA. The theme for the 2012 Symposium is Embracing our Future. For more information about the event, please click here.
Youngblood 5K – VA Hemophilia Foundation
The Virginia Hemophilia Foundation will hold its annual Youngblood 5K in less than two months. The walk/run will be held on February 18th in Midlothian, VA. For more information about the event please click here.