The National Hemophilia Foundation has a Consumer Bill of Rights and Responsibilities that tells you exactly what you should expect from your treatment center, as well as what is expected of you as a patient or parent at hemophilia treatment centers. Provided below are what is included in the Consumer Bill of Rights and the […]
Tag Archives | National Hemophilia Foundation
Pregnancy and Bleeding Disorders
KIDS & PARENTS, WELLNESS & FOOD May 11, 2010
Women with bleeding disorders or who are carriers of bleeding disorder genes may find pregnancy to be a time of anxiety and stress. Although risks vary by the severity of the bleeding disorder, taking certain precautions before and during pregnancy can result in a happy and successful childbirth. Before Pregnancy and Birth If you have […]
Factor Replacement Therapy for the Developing World
MEDICAL NEWS March 16, 2010
For hemophiliacs in the developing world who don’t always have access to the same resources and therapy that we are so fortunate to have in the United States, every little bit helps. In this case, though, it’s not just a “little bit.” The National Cancer Coalition (NCC) and Pfizer, Inc have teamed up to donate […]
2010 Hemophilia Walk Dates
EVENTS March 14, 2010
Don’t forget to mark your calendars for the 2010 National Hemophilia Foundation’s hemophilia walks. Walks are held across the country to help raise money and awareness about hemophilia. State associations sponsor the walks so check out the one closest to you. If you have any questions about the walks the NHF has a great FAQ […]
At Home Or Abroad: Traveling with Hemophilia
KIDS & PARENTS, WELLNESS & FOOD March 9, 2010
Just because you have hemophilia, that does not mean you cannot have a smooth and safe travel experience. By taking the following precautions, you can keep yourself healthy and prepare for any challenges you might experience when traveling with hemophilia. Going Through Customs You should carry a letter from your doctor that explains your condition […]
NHF Washington Days
EVENTS January 30, 2010
The National Hemophilia Foundation‘s annual Washington Day’s is February 24-25. During these two days in the nation’s capital you will have the opportunity to meet with representatives and discuss issues that are important to the bleeding disorder community as well as share experiences with lawmakers. For more information click here.
Next year’s NHF meeting location annouced
EVENTS December 19, 2009
The next National Hemophilia Foundation meeting will be in New Orleans in 2010. The dates have been set for November 11-13. Save the date!
See you at the NHF Meeting
EVENTS October 27, 2009
The NHF meeting is now only a few short days away! Three MedPro team members will be going to the meeting so hopefully they can connect with some of you who are going. The event is being held in San Francisco October 29-31.
National Hemophilia Foundation’s Annual Meeting
EVENTS October 2, 2009
There is still time to register for the NHF’s Annual Meeting which is only a few short weeks away. The event will be held at the San Francisco Marriott October 29 – 31. This year’s theme is Building Bridges. There will be events for people of all ages who have or who are affected by […]
Continuing Education Summit in Washington DC
EVENTS September 18, 2009
For the fifth year the National Hemophilia Foundation and the Center for Biomedical Continuing Education are holding two summits for people with hemophilia and their families to be educated on the most up to date information about hemophilia. The summits are sponsored by Novo Nordisk with funds from their education grants. The first of the […]