A bill recently introduced in both houses of Congress could change the way that Medicare patients receive their IVIg infusions. Current legislation under the Medicare IVIG Access Act of 2008 covers IVIg infusions but does not reimburse for in-home infusions. This means that patients must go to infusion centers or hospitals to receive their medication. […]
Tag Archives | primary immunodeficiency
Primary Immune Deficiency
Most people don’t consciously think about all the day-to-day exposure we come into contact with, as we typically rely unknowingly on our immune system to fight off colds, infections, viruses and other disease-causing microbes. The immune system works efficiently to protect our bodies. Therefore, people who suffer from immune deficiencies are at a much higher […]
Huge Success at the St. Pete Wiffle Ball Tournament
Over $150,000 was raised for the JMF’s Southeast Primary Immunodeficiency Fund at the St. Pete wiffle ball tournament! The event took place on July 3 at the Don CeSar Beach Resort on St. Pete Beach and there was lots of food, fun, and games. Organizers want to especially thank everyone who participated in the event […]
Talking about PI and IVIg treatments, part II: In the classroom
Read Talking about PI and IVIg treatments, part I: At home We recently blogged about the importance of bringing the topic of PI and IVIg into the household, especially for children living with this condition. But often your child spends just as much time at school and on play dates with friends as they do at […]
Talking about PI and IVIg treatments, part I: At home
Read Talking about PI and IVIg treatments, part II: In the classroom For many patients on Intravenous Immunoglobin (IVIg), one big hurdle is helping others—particularly family, friends—understand why the treatment is necessary. Living with a Primary Immunodeficiency (PI) does not mean the patient must limit activity or cannot enjoy real quality of life. So if you […]