Applications for the Education is Power Scholarship program are now available. Application forms can be found on the MedPro Rx Web site or by clicking here. Applicants must have hemophilia or von Willebrand Disease and as well be enrolled in community college or university in the fall of 2012 – as well as a few […]
Tag Archives | von Willebrand disease
Victory for Women with Bleeding Disorders
The Victory for Women with Bleeding Disorders is an initiative by the National Hemophilia Foundation to educate and empower women who have bleeding disorders such as von Willebrand Disease, hemophilia and platelet disorders. A diagnosis of a bleeding disorder is important so that the symptoms can be properly managed and the patient can have a […]
Moms Group Meeting in PA
The Western Pennsylvania Chapter of the National Hemophilia Foundation will hold a Moms Group Meeting on July 9. The meeting is for moms who have a bleeding disorder or moms who have children who have bleeding disorders like hemophilia and von Willebrand Disease. For more information about the meeting please click here.
Batter Up! with the Norfolk Tides
The Virginia Hemophilia Foundation will host a night with the Norfolk Tides baseball team May 21. For more information about the event please click here. There will be a special guest speaker – Marc Gilgannon – a physical therapist who will be talking about the Living Fit program.
Pregnancy with von Willebrand Disease
Starting a family when you are affected by von Willebrand disease (VWD) presents a myriad of challenges throughout the entire process right up until labor. Women with VWD are ten times more likely to suffer a miscarriage and prepartum bleeding, as well as premature birth, stillbirth or intrauterine demise (fetal death). To lower the risk […]
Von Willebrand Disease – Your Questions, Answered
Did you know that Von Willebrand (VWD) disease is the most common heredity bleeding disorder? The disease affects 1 in 90 in the United States, which adds up to approximately 1 percent or 3 million people who are currently suffering from it. There is also an estimated 1 million undiagnosed females with the disease. What […]
Education is Power Scholarships
We are now accepting applications for the Education is Power Scholarship 2011. Scholarship amounts range from $500 – $2,500 and at least 20 scholarships will be awarded. Since the program was created in 2006, over $250,000 in scholarships have been awarded. All applications and documentation must be postmarked by May 1, 2011. For more information […]
NC Hemophilia Walk a Success
The third annual NC Hemophilia walk was a huge success. This year over $100,000 was raised and $66,000 of that was in local funds. There were over 725 walkers for this year’s event. To date the National Hemophilia Foundation has raised over $1.2 million for the bleeding disorders community as well as raising awareness nationwide […]
Bleeding Disorders and Your Comprehensive Care Team
If you have a bleeding disorder, you know it can play a role in every aspect of your life, and can also affect many parts of your body. To stay healthy, you need a comprehensive care team, because bleeding disorders do not only affect you physically, but also mentally. With a comprehensive care team, there […]
Connecticut Hemophilia Society
Check out the Connecticut Hemophilia Society‘s events this fall. August “School’s In” – August 21 Scranton Memorial Library Madison, CT 10 AM – 12 PM Helpful information for parents of children with bleeding disorders that are school age. September For Men Only – TBD Open to male members of the bleeding disorder community, including […]