You don’t need to battle a chronic illness on your own. If your child is battling a chronic disease, there is a whole community out there consisting of other families in the same situation and even more people who are willing to help. This blog looks at the family of a girl receiving IVIg treatment […]
Tag Archives | awareness
Hemophilia As You Age
WELLNESS & FOOD May 19, 2010
Growing older requires lifestyle changes of all kinds, depending on your health. Aging with hemophilia is no different. Historically, the life expectancy of a person affected by hemophilia has been low. With the availability of certain drugs and the increased number of care centers handling hemophilia, life expectancy for hemophiliacs has increased. As with other […]
Pregnancy and Bleeding Disorders
KIDS & PARENTS, WELLNESS & FOOD May 11, 2010
Women with bleeding disorders or who are carriers of bleeding disorder genes may find pregnancy to be a time of anxiety and stress. Although risks vary by the severity of the bleeding disorder, taking certain precautions before and during pregnancy can result in a happy and successful childbirth. Before Pregnancy and Birth If you have […]
April is National Fabry Awareness Month
EVENTS April 15, 2010
The month of April is National Fabry Awareness month. You can visit the National Fabry Disease Foundation Web site and request a wristband and help raise awareness about Fabry disease. Fabry disease is a lysosomal storage disorder in which the enzyme that breaks down lipids does not work or the body is not producing enough […]