The Virginia Hemophilia Foundation will host a night with the Norfolk Tides baseball team May 21. For more information about the event please click here. There will be a special guest speaker – Marc Gilgannon – a physical therapist who will be talking about the Living Fit program.
Tag Archives | bleeding disorder
Von Willebrand Disease – Your Questions, Answered
Did you know that Von Willebrand (VWD) disease is the most common heredity bleeding disorder? The disease affects 1 in 90 in the United States, which adds up to approximately 1 percent or 3 million people who are currently suffering from it. There is also an estimated 1 million undiagnosed females with the disease. What […]
NC Hemophilia Walk a Success
The third annual NC Hemophilia walk was a huge success. This year over $100,000 was raised and $66,000 of that was in local funds. There were over 725 walkers for this year’s event. To date the National Hemophilia Foundation has raised over $1.2 million for the bleeding disorders community as well as raising awareness nationwide […]
Understanding New Medical Breakthroughs Regarding Hemophilia
For many generations, hemophilia has been deemed as an incurable chronic disease, which forces many people to learn to cope with it and hope for the best possible outcome. Today, thanks to gene therapy research focused on getting to the bottom of the gene mutation that results in hemophilia, new advances in management therapies are […]
Easy Ways To Avoid Anemia
Anemia caused by “iron-poor blood” is still the most common cause of anemia, a condition in which a lack of red blood cells causes oxygen deficiency in muscles. Blood loss can lead to anemia, so if you have a bleeding disorder, it is important to know the preventative measures you can take to prevent anemia. […]
Bleeding Disorders and Your Comprehensive Care Team
If you have a bleeding disorder, you know it can play a role in every aspect of your life, and can also affect many parts of your body. To stay healthy, you need a comprehensive care team, because bleeding disorders do not only affect you physically, but also mentally. With a comprehensive care team, there […]
Dental Care When You Have Hemophilia
People with hemophilia may be scared to take care of their teeth because they fear cutting their gums and starting a bleed. Regardless of whether or not you have hemophilia, dental care is important and it is vital to take care of your teeth. Dental health affects overall health, and if you neglect to clean […]
Sending Your Child With Hemophilia To School
When it is time to send your child with hemophilia off to school, or for him to start a new year with new teachers, there are several things you can do to help keep your child safe and healthy. To help prepare yourself, your child and your school for the new school year, take the […]
Hemophilia Bill of Rights
The National Hemophilia Foundation has a Consumer Bill of Rights and Responsibilities that tells you exactly what you should expect from your treatment center, as well as what is expected of you as a patient or parent at hemophilia treatment centers. Provided below are what is included in the Consumer Bill of Rights and the […]
Pregnancy and Bleeding Disorders
Women with bleeding disorders or who are carriers of bleeding disorder genes may find pregnancy to be a time of anxiety and stress. Although risks vary by the severity of the bleeding disorder, taking certain precautions before and during pregnancy can result in a happy and successful childbirth. Before Pregnancy and Birth If you have […]