One of the most important aspects of hemophilia is, as with any ongoing medical condition, knowing your options when it comes to management and treatment. In past posts we have covered this topic in great depth. Here are a few more inspiring stories of how individuals with hemophilia have made the decision to self-infuse: Taking […]
Tag Archives | hemophilia
NC Hemophilia Walk a Success
The third annual NC Hemophilia walk was a huge success. This year over $100,000 was raised and $66,000 of that was in local funds. There were over 725 walkers for this year’s event. To date the National Hemophilia Foundation has raised over $1.2 million for the bleeding disorders community as well as raising awareness nationwide […]
Understanding New Medical Breakthroughs Regarding Hemophilia
For many generations, hemophilia has been deemed as an incurable chronic disease, which forces many people to learn to cope with it and hope for the best possible outcome. Today, thanks to gene therapy research focused on getting to the bottom of the gene mutation that results in hemophilia, new advances in management therapies are […]
Keeping Your Child With Hemophilia Safe Around The House
Having a young child running around the house can be stressful for anyone, but add a bleeding disorder to that, and stress quickly elevates. However, there are many simple ways to prevent problems and keep your child with hemophilia safe around the house from infancy throughout childhood. Be sure to place bumper pads that meet […]
How Prenatal Testing Can Prepare You For a Child With Hemophilia
Pregnancy is traditionally a time of elation and joy, but for female carriers of hemophilia, it can sometimes be a period of stress and anxiety. For anyone that is concerned that his or her child may be born with hemophilia, prenatal testing and genetic counseling can help ease this stress. Since prenatal testing can be […]
Easy Ways To Avoid Anemia
Anemia caused by “iron-poor blood” is still the most common cause of anemia, a condition in which a lack of red blood cells causes oxygen deficiency in muscles. Blood loss can lead to anemia, so if you have a bleeding disorder, it is important to know the preventative measures you can take to prevent anemia. […]
Bleeding Disorders and Your Comprehensive Care Team
If you have a bleeding disorder, you know it can play a role in every aspect of your life, and can also affect many parts of your body. To stay healthy, you need a comprehensive care team, because bleeding disorders do not only affect you physically, but also mentally. With a comprehensive care team, there […]
Importance Of Stress Management For Hemophilia Patients
Stress can be brought on easily with life changes. For this reason, people suffering from chronicdiseases like hemophilia may suffer from more stress than others on a regular basis. Patientsand/or patients’ families may suffer from emotional, mental and physical stress. Stress cancome from the diagnosis of the disease, financial woes, physical discomfort and fear of […]
Connecticut Hemophilia Society
Check out the Connecticut Hemophilia Society‘s events this fall. August “School’s In” – August 21 Scranton Memorial Library Madison, CT 10 AM – 12 PM Helpful information for parents of children with bleeding disorders that are school age. September For Men Only – TBD Open to male members of the bleeding disorder community, including […]
Dental Care When You Have Hemophilia
People with hemophilia may be scared to take care of their teeth because they fear cutting their gums and starting a bleed. Regardless of whether or not you have hemophilia, dental care is important and it is vital to take care of your teeth. Dental health affects overall health, and if you neglect to clean […]
