Don’t forget to mark your calendars for the 2010 National Hemophilia Foundation’s hemophilia walks. Walks are held across the country to help raise money and awareness about hemophilia. State associations sponsor the walks so check out the one closest to you. If you have any questions about the walks the NHF has a great FAQ […]
Tag Archives | hemophilia
At Home Or Abroad: Traveling with Hemophilia
KIDS & PARENTS, WELLNESS & FOOD March 9, 2010
Just because you have hemophilia, that does not mean you cannot have a smooth and safe travel experience. By taking the following precautions, you can keep yourself healthy and prepare for any challenges you might experience when traveling with hemophilia. Going Through Customs You should carry a letter from your doctor that explains your condition […]
Other available scholarship opportunities
March 2, 2010
For all of those students looking for ways to pay for your education here is a great resource. The “Education is Power” scholarship is one great opportunity but there a many, many more scholarships – so don’t just stop at one application. Higher education can be expensive but with scholarships and student loans as well […]
NC Hemophilia Family Program
EVENTS February 23, 2010
This is the last week to register for the Family Program that Hemophilia of North Carolina is offering. The presentation will be about sports and exercise for children who have a bleeding disorders. Dr. Paulette Bryant of Presbyterian Blume Pediatrics Oncology/Hematology will be giving the talk. The program is for families with children ages 5-12. […]
About two months left for the Education is Power Scholarship
February 21, 2010
Students with hemophilia or von Willebrand disease are encouraged to apply for the 2010 MedPro Rx scholarship. Applications are available on our Web site or by clicking this link. The deadline for completed applications is May 1. At least 20 scholarships ranging from $500 to $2,500 will be awarded. In 2009, 79 scholarships totaling $79,000 […]
What To Expect During And After A Clotting Factor Infusion
WELLNESS & FOOD February 4, 2010
It is important that people with hemophilia understand how to recognize the signs of internal bleeding. An infusion needs to occur once the bleeding begins to restore clotting factors, so the sooner the symptoms are noticed the faster the bleeding can be stopped. Before going in for an infusion, or administering one on your own, […]
NHF Washington Days
EVENTS January 30, 2010
The National Hemophilia Foundation‘s annual Washington Day’s is February 24-25. During these two days in the nation’s capital you will have the opportunity to meet with representatives and discuss issues that are important to the bleeding disorder community as well as share experiences with lawmakers. For more information click here.
Top Seven Myths About Hemophilia
WELLNESS & FOOD January 26, 2010
1. Bleeding problems only affect boys: While only boys can have hemophilia, girls can be symptomatic carriers, which means they are mild bleeders, or have Von Willebrand disease (http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=182&contentid=47&rptname=bleeding), which affects both boys and girls. 2. Everyone with hemophilia has the same degree of deficiency: Hemophilia is characterized in three levels (http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=180&contentid=45&rptname=bleeding): mild (clotting activity […]
Start your scholarship applications
January 19, 2010
The 2010 MedPro Rx scholarship application is available on our Web site by clicking this link. People with hemophilia or von Willebrand disease are encouraged to apply. At least 20 scholarships ranging from $500 to $2,500 will be awarded. Last year 79 scholarships totaling $79,000 were given to students in 31 states. Since 2006, $207,000 […]
Hemophilia in the Developing World
MEDICAL NEWS January 12, 2010
Research done by North Carolina State University researchers have shown that people living with hemophilia in the developing world are not getting the treatment that their condition requires. Dr. Jeff Stonebraker, a researcher at North Carolina State University, led the study that examined the occurrence of hemophilia and its treatment. The president of the World […]