The United Pompe Foundation will hold a patient social and meeting April 19-21 in North Carolina at Duke University. In addition to the social and networking time, there will be talks on current enzyme replacement therapy, the importance of diet and exercise as well as monitoring Pompe disease with MRIs. For more information about the […]
Archive | EVENTS
2012 Hemophilia Walks
EVENTS January 23, 2012
The National Hemophilia Foundation is kicking off the 2012 Hemophilia Walk season with a new Web site! This year there will be 24 walk locations across the United States. Not all the locations have set the time and date for the walks but you can still visit the new site by clicking here.
Educational Meeting on Gaucher Disease
EVENTS January 20, 2012
The National Gaucher Foundation will hold an informational meeting on Gaucher Disease in Ft. Lauderdale, FL on February 26. The event will take place at the Double Tree from 12-3 in the afternoon. Lunch will be served. The session will offer attendees time to have questions answered about the treatment of Gaucher Disease. For more […]
2012 NHF Washington Days
EVENTS January 16, 2012
The National Hemophilia Foundation’s 2012 Washington Days are fast approaching. The dates have been set for March 7-9. There will be plenty of time to meet with lawmakers and staff as well as time to network with other families affected by bleeding disorders. For more information or to register please click here.
Upcoming Meetings for the Greater Florida Chapter of the Myasthenia Gravis Foundation of America
EVENTS January 12, 2012
If you live in the Florida Area and are looking for a Myasthenia Gravis support group meeting, then there are some meetings coming up in the next several weeks. Boynton Beach Support Group – January 21 at 1 pm Daytona Beach Support Group – January 28 at 10 am St. Petersburg Support Group – February […]
Central Texas Hemophilia Association – Balancing Sports and Exercise
EVENTS January 9, 2012
The Central Texas Hemophilia Association will host an evening talk on Balancing Sports and Exercise. The presentation will be in Spanish and will take place at Pappasitto’s Cantina in Arlington, TX. For more information about the event, please click here.
Hemophilia Federation of America – Symposium 2012
EVENTS December 21, 2011
Save the date for March 30-31, 2012. The Hemophilia Federation of America will host the 2012 Symposium in Santa Clara, CA. The theme for the 2012 Symposium is Embracing our Future. For more information about the event, please click here.
Youngblood 5K – VA Hemophilia Foundation
EVENTS December 19, 2011
The Virginia Hemophilia Foundation will hold its annual Youngblood 5K in less than two months. The walk/run will be held on February 18th in Midlothian, VA. For more information about the event please click here.
Myasthena Gravis Foundation National Conference
EVENTS December 9, 2011
The Myasthenia Gravis Foundation of America will hold its annual national conference April 25-27, 2012. The conference will take place at Bally’s Hotel in Las Vegas. There are an number of great speakers scheduled who will cover a variety of topics that are of interest to Myasthenia Gravis patients and their families. For more information […]
Pan Handle of Maryland and West Virginia Myasthenia Gravis Meeting
EVENTS December 5, 2011
The Myasthenia Gravis Foundation Pan Handle of Maryland and West Virginia Support Group Chapter will hold a meeting on December 10th. The meeting will take place at 10:00 am. For more information please click here.