Lace up your walking shoes and help the Myasthenia Gravis Foundation of America reach and surpass their fundraiser goal by walking in one of the 2011 Fall Walks! There is still time left so find a walk close to you. Here are the Fall Walk locations: + Phoenix, AZ + Los Angeles County, CA + […]
Archive | EVENTS
Mark your Calendars!!!
EVENTS August 24, 2011
Mark your calendars for the 2012 World Hemophilia Foundation‘s World Congress. The event will take place in Paris France July 8-12, 2012. For more information about the event please click here.
$40,000 Raised at the Colorado Hemophilia Walk!
EVENTS August 23, 2011
The Colorado Hemophilia Walk was held on August 13 raised $40,000! The walk raised lots of funds for the organization but also raised awareness about hemophilia in the Denver area. Keep checking back here for more information about other walks in the 2011 season.
Myasthenia Gravis Scientific Sessions September 2011
EVENTS August 22, 2011
Mark your calendars for the Myasthenia Gravis Scientific Sessions! The event will be held on September 14 at the Hilton San Francisco. The Scientific Sessions are geared for medical professionals who want to learn about the latest studies and information on Myasthenia Gravis. For more information about this event please click here.
NEW Myasthenia Gravis Support Groups in the North Carolina!
EVENTS August 17, 2011
There are several new Myasthenia Gravis support groups with upcoming meetings in the next week or so. The Durham/Chapel Hill Support Group will meet on the third Saturday of every month starting August 20. The group will meet at the Southwest Regional Library in Durham. For information please call the Carolinas Chapter MGFA – (877) […]
Victory for Women with Bleeding Disorders
EVENTS August 15, 2011
The Victory for Women with Bleeding Disorders is an initiative by the National Hemophilia Foundation to educate and empower women who have bleeding disorders such as von Willebrand Disease, hemophilia and platelet disorders. A diagnosis of a bleeding disorder is important so that the symptoms can be properly managed and the patient can have a […]
Three Months Until Chicago and the NHF Annual Meeting
EVENTS August 11, 2011
Mark your calendars for November 10-12 for the National Hemophilia Foundation Annual Meeting. This year it will be in Chicago. There will a number of great speakers, breakout sessions and roundtable discussions. The meeting will be a good time for networking with other people living with hemophilia and families who have children with hemophilia.
Myasthenia Gravis Support Group of Central Texas Meeting
EVENTS August 8, 2011
On Wednesday August 10 the Myasthenia Gravis Support Group of Central Texas will hold a support meeting at 7 pm. The meeting will be held at the Austin Public Library Spicewood Springs location. For more information please click here.
VA Hemophilia Foundation – First Steps Picnic
EVENTS August 5, 2011
The Virginia Hemophilia Foundation is hosting a First Steps picnic in Richmond on Sunday August 7. The event is geared toward families who have children who have been diagnosed with a bleeding disorder in the past seven years. The picnic will take place the the Lewis Ginter Botanical Gardens at 10:30 am. For more information […]
Gaucher and Fabry Patient and Family Conference
EVENTS August 1, 2011
Mark your calendars for the Colorado Lysosomal Disorders Program Gaucher and Fabry Patient and Family Conference on August 27th. The conference will take place at Children’s Hospital Colorado from 9:00am to 11:30am. There will be a couple joint sessions as well as breakout sessions. Please click here for more information.