The Central North Carolina Myasthenia Gravis Support Group will be holding a meeting on May 1. For more information about the group and the meeting please visit their Web site. Myasthenia Gravis is an autoimmune neuromuscular condition in which there is a loss of voluntary muscle control. There are several treatment options for people living […]
Archive | EVENTS
April is National Fabry Awareness Month
EVENTS April 15, 2010
The month of April is National Fabry Awareness month. You can visit the National Fabry Disease Foundation Web site and request a wristband and help raise awareness about Fabry disease. Fabry disease is a lysosomal storage disorder in which the enzyme that breaks down lipids does not work or the body is not producing enough […]
World Hemophilia Day 2010
EVENTS April 13, 2010
On April 17 be sure to celebrate World Hemophilia Day and help raise awareness about Hemophilia, von Willebrand disease and other bleeding disorders. “The goal of the World Federation of Hemophilia is that, one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live,” said Mark Skinner, World […]
2010 Hemophilia Walk Dates
EVENTS March 14, 2010
Don’t forget to mark your calendars for the 2010 National Hemophilia Foundation’s hemophilia walks. Walks are held across the country to help raise money and awareness about hemophilia. State associations sponsor the walks so check out the one closest to you. If you have any questions about the walks the NHF has a great FAQ […]
NC Hemophilia Family Program
EVENTS February 23, 2010
This is the last week to register for the Family Program that Hemophilia of North Carolina is offering. The presentation will be about sports and exercise for children who have a bleeding disorders. Dr. Paulette Bryant of Presbyterian Blume Pediatrics Oncology/Hematology will be giving the talk. The program is for families with children ages 5-12. […]
Talking about PI and IVIg treatments, part II: In the classroom
EVENTS, KIDS & PARENTS February 16, 2010
Read Talking about PI and IVIg treatments, part I: At home We recently blogged about the importance of bringing the topic of PI and IVIg into the household, especially for children living with this condition. But often your child spends just as much time at school and on play dates with friends as they do at […]
NHF Washington Days
EVENTS January 30, 2010
The National Hemophilia Foundation‘s annual Washington Day’s is February 24-25. During these two days in the nation’s capital you will have the opportunity to meet with representatives and discuss issues that are important to the bleeding disorder community as well as share experiences with lawmakers. For more information click here.
Next year’s NHF meeting location annouced
EVENTS December 19, 2009
The next National Hemophilia Foundation meeting will be in New Orleans in 2010. The dates have been set for November 11-13. Save the date!
See you at the NHF Meeting
EVENTS October 27, 2009
The NHF meeting is now only a few short days away! Three MedPro team members will be going to the meeting so hopefully they can connect with some of you who are going. The event is being held in San Francisco October 29-31.
NC Hemophilia Walk a HUGE Success
EVENTS, KIDS & PARENTS October 20, 2009
The Hemophilia of North Carolina Walk was a huge success this past Saturday. Thank you to everyone who participated, especially those who were a part of the MedPro Team. We raised $7,738.78 for Hemophilia of North Carolina. Overall the Chapter met and surpassed the goal of $75,000 – we have not been given an official […]