Many people living with hemophilia will experience pain from a complication of their condition. It can be anything from a rare case of pain caused by a bleed to an ongoing pain caused from arthritis. Even routine dental procedures or medical surgeries can cause excessive pain for a hemophiliac. So how do you deal with […]
Archive | WELLNESS & FOOD
Find tips, and resources including overviews of different conditions.
Understanding the Side Effects of IVIg
It is no secret that Intravenous Immunoglobin (IVIg) is crucial in supplying antibodies to people with autoimmune disorders. The benefits of the treatment far outweigh any negative side effects, but it is still important to be aware of such effects and to be able to react accordingly. Possible side effects of IVIg include: • Headaches […]
Play it Safe: Exercising with Hemophilia
Many people believe that those with hemophilia should be inactive to avoid the risk of bleeds. For those exercising with hemophilia, regular activity can provide positive benefits that outweigh the risk of bleeds such as strengthening muscles, which provides protection for joints and also helps with coordination and stamina. In addition to the physical benefits, […]
A Vancouver Paralympian’s Story
The 2010 Winter Paralympics came to a close earlier this week on March 21. There are a number of amazing stories of how people have overcome major obstacles in their lives to compete in the worldwide sporting event. Jacqui Kapinowski, of New Jersey, is one of those athletes, who has stiff man syndrome or stiff […]
At Home Or Abroad: Traveling with Hemophilia
Just because you have hemophilia, that does not mean you cannot have a smooth and safe travel experience. By taking the following precautions, you can keep yourself healthy and prepare for any challenges you might experience when traveling with hemophilia. Going Through Customs You should carry a letter from your doctor that explains your condition […]
IVIg can help ease chronic pain patients too
We already know that Intravenous Immunoglobin (IVIg) is used primarily to treat three types of ailments—immunodeficiences, autoimmune neuromuscular disorders, and certain rhematologic conditions. But a recent study, published in the Annals of Internal Medicine journal on February 1, reveals that IVIg might be useful to help treat a chronic pain condition as well. A team […]
Talking about PI and IVIg treatments, part I: At home
Read Talking about PI and IVIg treatments, part II: In the classroom For many patients on Intravenous Immunoglobin (IVIg), one big hurdle is helping others—particularly family, friends—understand why the treatment is necessary. Living with a Primary Immunodeficiency (PI) does not mean the patient must limit activity or cannot enjoy real quality of life. So if you […]
What To Expect During And After A Clotting Factor Infusion
It is important that people with hemophilia understand how to recognize the signs of internal bleeding. An infusion needs to occur once the bleeding begins to restore clotting factors, so the sooner the symptoms are noticed the faster the bleeding can be stopped. Before going in for an infusion, or administering one on your own, […]
Top Seven Myths About Hemophilia
1. Bleeding problems only affect boys: While only boys can have hemophilia, girls can be symptomatic carriers, which means they are mild bleeders, or have Von Willebrand disease (http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=182&contentid=47&rptname=bleeding), which affects both boys and girls. 2. Everyone with hemophilia has the same degree of deficiency: Hemophilia is characterized in three levels (http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=180&contentid=45&rptname=bleeding): mild (clotting activity […]
Recommended Diet for Hemophiliacs
It is important for everyone to keep to a healthy diet to stay in peak physical condition. But for people living with hemophilia, there are certain foods that are recommended and certain foods that you may want to avoid including in your meals. An article from Organic Health and Beauty, lists the foods you should […]
