On April 17 be sure to celebrate World Hemophilia Day and help raise awareness about Hemophilia, von Willebrand disease and other bleeding disorders. “The goal of the World Federation of Hemophilia is that, one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live,” said Mark Skinner, World […]
Tag Archives | bleeding disorder
Play it Safe: Exercising with Hemophilia
Many people believe that those with hemophilia should be inactive to avoid the risk of bleeds. For those exercising with hemophilia, regular activity can provide positive benefits that outweigh the risk of bleeds such as strengthening muscles, which provides protection for joints and also helps with coordination and stamina. In addition to the physical benefits, […]
At Home Or Abroad: Traveling with Hemophilia
Just because you have hemophilia, that does not mean you cannot have a smooth and safe travel experience. By taking the following precautions, you can keep yourself healthy and prepare for any challenges you might experience when traveling with hemophilia. Going Through Customs You should carry a letter from your doctor that explains your condition […]
What To Expect During And After A Clotting Factor Infusion
It is important that people with hemophilia understand how to recognize the signs of internal bleeding. An infusion needs to occur once the bleeding begins to restore clotting factors, so the sooner the symptoms are noticed the faster the bleeding can be stopped. Before going in for an infusion, or administering one on your own, […]
NHF Washington Days
The National Hemophilia Foundation‘s annual Washington Day’s is February 24-25. During these two days in the nation’s capital you will have the opportunity to meet with representatives and discuss issues that are important to the bleeding disorder community as well as share experiences with lawmakers. For more information click here.
Top Seven Myths About Hemophilia
1. Bleeding problems only affect boys: While only boys can have hemophilia, girls can be symptomatic carriers, which means they are mild bleeders, or have Von Willebrand disease (http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=182&contentid=47&rptname=bleeding), which affects both boys and girls. 2. Everyone with hemophilia has the same degree of deficiency: Hemophilia is characterized in three levels (http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=180&contentid=45&rptname=bleeding): mild (clotting activity […]
Recommended Diet for Hemophiliacs
It is important for everyone to keep to a healthy diet to stay in peak physical condition. But for people living with hemophilia, there are certain foods that are recommended and certain foods that you may want to avoid including in your meals. An article from Organic Health and Beauty, lists the foods you should […]
Preventing Common Home Hemophilia Injuries
For those living with hemophilia taking necessary precautions throughout their day is a necessary part of their lives. But preventing common injuries doesn’t mean having to watch each step that you take. Certain steps can be taken to help prevent common injuries that occur while you are at home. An article that was posted on […]