The National Hemophilia Foundation has an excellent source for people living with hemophilia, their families and care givers. There are sections for children, tweens, and young adults that are specific to the differences in lifestyles of the different age groups. To visit the Steps for Living Web site, please click here.
Tag Archives | resources
Hemophilia Outreach Center
The Hemophilia Outreach Center is a great source for hemophilia support services in Northeast Wisconsin and the Upper Peninsula of Michigan. There are a number of programs to assist people and families who live with bleeding disorders. For more information about the Hemophilia Outreach Center, please click here.
National Fabry Disease Foundation Blog
The National Fabry Disease Foundation has started a new blog! Jerry is writing the blog. He is writing with the purpose to raise awareness about Fabry Disease as well as keep everyone informed about events in the Fabry disease community.
Exercising with Hemophilia
Exercise is important for all individuals, but for those with hemophilia it provides muscular strength and a lower body weight, inevitability improving and maintaining joint health. For many, exercising and leading an active healthy lifestyle is critical, as some suggest that particular training methods can decrease the frequency of bleeding potential. There are countless ways […]
Lowering Your Risk for Multiple Sclerosis with Vitamin D
There are plenty of reasons to be excited about the onset of summer, a favorite being the opportunity to catch some rays. Did you know, however, that more studies are finding an increase in vitamin D, whose production is prompted by sun exposure, can help lower your risk of developing multiple sclerosis (MS)? Allow me […]
Myasthenia Gravis Association – Missouri and Kansas
Check out another great association’s Web site. The site for the Myasthenia Gravis Association of Missouri and Kansas has a number of resources and even a great video! Click here to visit the site.
Myasthenia Gravis Foundation of California
The Myasthenia Gravis Foundation of California has a great Web site with information on support groups in the state as well as a newsletter section and a section in Spanish. Please click here to visit their site. Myasthenia Gravis is an autoimmune neuromuscular disease characterized by weakness in the skeletal or voluntary muscles. One of […]
Guillain-Barré Syndrome
An autoimmune disorder, Guillain-Barre syndrome occurs when the body’s immune system erroneously attacks particular parts of the nervous system for unknown reasons. Commonly referred to as GBS, the unsystematic attacks cause nerve inflammation, leading to muscle fatigue and exhaustion. Unfamiliar with what causes GBS, research has traced the disease to most often precede a minor […]
Living with MS: Treatment Options and Management
Living with an oftentimes debilitating and unpredictable disease like multiple sclerosis (MS) without a doubt presents some of the most challenging health and lifestyle scenarios. In this post, we would like to break down living with MS into two categories: Treatment and management, as they are not one and the same, but should be approached […]
Hepatitis C – Separating Facts from Myth
When it comes to hepatitis C, there are a lot of myths surrounding how it can be contracted and passed. Some think that only those who indulge in “risky behavior” need to be concerned with contracting the disease, or that they would have obvious symptoms should they be infected. Neither of these assumptions is correct. […]
