When it is time to send your child with hemophilia off to school, or for him to start a new year with new teachers, there are several things you can do to help keep your child safe and healthy. To help prepare yourself, your child and your school for the new school year, take the […]
Tag Archives | hemophilia
Hemophilia Bill of Rights
The National Hemophilia Foundation has a Consumer Bill of Rights and Responsibilities that tells you exactly what you should expect from your treatment center, as well as what is expected of you as a patient or parent at hemophilia treatment centers. Provided below are what is included in the Consumer Bill of Rights and the […]
Hemophilia As You Age
Growing older requires lifestyle changes of all kinds, depending on your health. Aging with hemophilia is no different. Historically, the life expectancy of a person affected by hemophilia has been low. With the availability of certain drugs and the increased number of care centers handling hemophilia, life expectancy for hemophiliacs has increased. As with other […]
NC Hemophilia Meeting May 22
Hemophilia of North Carolina will be holding the annual meeting May 22 at the Sheraton Charlotte Airport Hotel in Charlotte. There are morning and afternoon sessions as well as activities for the whole family. There is no cost for attending the meeting. For registration information click here. The keynote speaker is Tres Major, the President […]
The Clotting Process
Have you ever wondered how your blood clots? Check out a great animation on the MedPro Rx Kids site. The visuals help give a better understanding of the clotting process and how the body maintains hemostasis. Hemostasis is important when blood vessels are damaged. People who have hemophilia must have receive infusions of factor to […]
Managing Pain
Many people living with hemophilia will experience pain from a complication of their condition. It can be anything from a rare case of pain caused by a bleed to an ongoing pain caused from arthritis. Even routine dental procedures or medical surgeries can cause excessive pain for a hemophiliac. So how do you deal with […]
World Hemophilia Day 2010
On April 17 be sure to celebrate World Hemophilia Day and help raise awareness about Hemophilia, von Willebrand disease and other bleeding disorders. “The goal of the World Federation of Hemophilia is that, one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live,” said Mark Skinner, World […]
Play it Safe: Exercising with Hemophilia
Many people believe that those with hemophilia should be inactive to avoid the risk of bleeds. For those exercising with hemophilia, regular activity can provide positive benefits that outweigh the risk of bleeds such as strengthening muscles, which provides protection for joints and also helps with coordination and stamina. In addition to the physical benefits, […]
Six Weeks Until Scholarship Applications are Due
If you have not started your “Education is Power” scholarship application you still have time. Applications are due May 1. If you need an application form please visit our MedProRx.com or click this link. There will be at least 20 scholarships awarded ranging from $500 to $2,500. The “Education is Power” scholarship is open to students […]
Factor Replacement Therapy for the Developing World
For hemophiliacs in the developing world who don’t always have access to the same resources and therapy that we are so fortunate to have in the United States, every little bit helps. In this case, though, it’s not just a “little bit.” The National Cancer Coalition (NCC) and Pfizer, Inc have teamed up to donate […]